I realized that I didn't have much about me on my blog so here it is.
I am 35 year old mother of 3. I have been married to my husband for 9 years and have had the opportunity to travel thanks to his job in the Army. I was diagnosed with Wegener's Granulomatosis in August 2010. My interests seem to be somewhat odd to my family but natural to me. I love documentaries, and genetics. In fact I drive my family crazy with all my talk about these subjects. I like to say that I like to always learn. I also love animals. I have 8 animals in my home, 4 cats, 3 ferrets and 1 dog. Since my oldest child is about to graduate from high school, my animals make sure I am not lonely while everyone is at work or school.
Tuesday, May 14, 2013
My brain is working overtime.
So now that I am "ok," I have to wonder if there are other alternatives to the treatment that I received. Now I don't want to come across as though I am not grateful for the help that I received. I am very grateful. However, the side effects of these medications were enough to make me honestly say that I won't do it again. The main drug that I have a problem with is prednisone.
I am sure that prednisone has small side effects if used in small doses. Unfortunately, I wouldn't know about that. I was 80mg a day for 11 months, trying to control a disease that no one really knows anything about. After going into remission in June 2011, I was put on a maintenance drug call Imuran. I took it everyday on schedule, like I was supposed to. After reading through documentation I began to question the use of this. I talked to my doctor about this new information. I stopped taking it in August 2011. I haven't had any problems. Stopping this medication was my decision. Stopping any medication is dangerous. Please talk to your doctor before you make any decision.
What I wonder is why does it appear that there is only one method of treatment? And why is it so incredibly harsh? When I mention treatment methods that are more herbal or based on diet and nutrition, the response is always the same. I can try it but it probably won't help. But it won't hurt me to have a better diet. Ironically, this has been said to me AFTER I gained 140 lbs from the prednisone. Well of course a better diet will help DUH! What I really wanted to know is if I remove the unnatural items from my diet if it would help with my disease.
What appears is that now that I have gone into remission, I am basically on my own. Since I refuse to take anymore medications, all a doctor will do is monitor my current situation and that is it. No help as far as other methods that "could" work, or how the best method would be to lose all this weight and other problems I have, as a direct result of the extended prednisone use. My thought is I didn't get this way on my own and shouldn't have to get back to what I was on my own either.
I am sure that prednisone has small side effects if used in small doses. Unfortunately, I wouldn't know about that. I was 80mg a day for 11 months, trying to control a disease that no one really knows anything about. After going into remission in June 2011, I was put on a maintenance drug call Imuran. I took it everyday on schedule, like I was supposed to. After reading through documentation I began to question the use of this. I talked to my doctor about this new information. I stopped taking it in August 2011. I haven't had any problems. Stopping this medication was my decision. Stopping any medication is dangerous. Please talk to your doctor before you make any decision.
What I wonder is why does it appear that there is only one method of treatment? And why is it so incredibly harsh? When I mention treatment methods that are more herbal or based on diet and nutrition, the response is always the same. I can try it but it probably won't help. But it won't hurt me to have a better diet. Ironically, this has been said to me AFTER I gained 140 lbs from the prednisone. Well of course a better diet will help DUH! What I really wanted to know is if I remove the unnatural items from my diet if it would help with my disease.
What appears is that now that I have gone into remission, I am basically on my own. Since I refuse to take anymore medications, all a doctor will do is monitor my current situation and that is it. No help as far as other methods that "could" work, or how the best method would be to lose all this weight and other problems I have, as a direct result of the extended prednisone use. My thought is I didn't get this way on my own and shouldn't have to get back to what I was on my own either.
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